Thank you for visiting my Falmouth Road Race® runner site. I am excited to be participating in this event to raise funds for Compassionate Care ALS. Raising funds from the Falmouth Road Race will allow CCALS to continue to provide direct services and durable goods to ALS patients, their families, and their caregivers. Please give generously and assist us in making a difference in the lives of those affected by ALS.
This will be my 5th year running the Falmouth Road Race for ALS to benefit Compassionate Care ALS, a non-profit organization so dear to my heart . I dedicate this year to Terry Nash and Frank Braney who I personally cared for.
What some people don’t know is how much it takes for an ALS patient just to get out of bed for the day and how much work it is on the caregivers, especially the family members who don’t want to watch their loved ones suffer . That’s physical and emotional pain all at once .
Imagine not being able to move your arms or legs when you wake up but your mind is telling you to try . Wanting to tell an exciting story but your speech doesn’t match your mind . Only parts of your words come out slurred and people have a hard time understanding you . Not being able to open your arms for a hug . Having to get wrapped in a sling and moved around by a lift to get from room to room or to the bathroom and shower while everyone else around you is walking ,talking and laughing . Feeling your muscles spasm not just for a second , it lasts all day long and you can’t control it without medication. Noticing your breathing is changing and you can’t communicate that to let someone know .
ALS is the most unwelcome disease out there . The best thing we can do at the very least is to be mindful of all of this . We can never feel the pain they are going through internally but we can sure as hell try to sit with them through their emotions externally . They are still the same person. Too many people run away as soon as the person starts to look differently or when their speech goes . It’s not about how scary that might feel for you , it’s about how scared that person is living with ALS facing drastic changes in their body daily . It’s about showing up and just being there . Right where the patient is . Not ahead of them , not behind them but right where they are.
It will literally ware and tear on your body , it is heart wrenching , exhausting , emotional , inspiring , rewarding , Never Ending . They “teach “ you not to get attached. You should worry and question your career path if you don’t get attached . You have a heart . If you can feel their pain and be with that , it’s all they need . If you have a loved one who is ill , you would most definitely want someone with compassion taking care of them . Not someone who wants a paycheck .
LETTING GO :
The absolute hardest / most beautiful part of this journey is being there until the end and holding their hand until they crossover . We know they are no longer suffering . We are happy they are at peace but are heartbroken the journey ends.It started off as the hardest thing I’ve ever done in my life but I know I’m able to do it with calmness and compassion . No one should ever die alone.
Which brings me to why I am running for ALS. CCALS shows up when the rest of the world runs scared . They offer emotional support to help navigate the difficult obstacles of ALS. They offer equipment needed to help families navigate their loved ones quality of life with dignity . No paper work , no hassle , just pure joy of helping others in need. To learn more about CCALS visit : CCALS.org
Now I humbly ask you to please consider making a generous donation to help those in need who are still living with ALS today . Thank you from the bottom of my heart ?