Thank you for visiting my Falmouth Road Race® runner site. I am excited to be participating in this event to raise funds for Compassionate Care ALS. Raising funds from the Falmouth Road Race will allow CCALS to continue to provide direct services and durable goods to ALS patients, their families, and their caregivers. Please give generously and assist us in making a difference in the lives of those affected by ALS.
A New Perspective
Until recently, all I knew about ALS was what I saw on Facebook and the ice bucket challenge. Then I met Jenny. She has literally opened my eyes and I have gained a whole new appreciation for the people living with ALS and those who have dedicated themselves to providing care for them. I have a whole new perspective after spending time with some very special people and there is so much I didn't know.
I have had the immense pleasure of meeting many people recently who are involved in the ALS community and there are so many out there who may not be aware of just what ALS is and the difficulties it brings. I didn't know just how terrible it is as a disease. Through the progression of ALS, the body eventually loses the ability to move, speak, and even breathe without assistance. ALS essentially traps you within your own body with full presence of mind, but without the ability to give someone a hug, carry on a conversation, or even move your own head to get comfortable.
Even considering the difficulty and effort that ALS brings into the lives of people, they persevere anyway. Through everything, the people I have come to know have showed me what it is to live with ALS, and carry on despite the challenges. The man I am running in honor of, Terry Nash, gave me a new appreciation for life and the people close to me. Through him, I saw what it was like to struggle against a terminal disease, and the real and powerful toll it takes on self and family.
But we still joked about ALS, he took things in stride and handled everything admirably. We were able to talk with the use of a Tobii (text to speech) device, and we talked about motorcycles, cars, and girls. Specifically, one girl. Terry told how lucky he was to have Jenny as his caregiver, and how lucky I was to have her in my life as well. Her job as a caregiver is a challenging one, and I am amazed at the care and dedication required. Jenny has been a caregiver for many patients with ALS. I have learned so much listening to her talk about each of them and the difficulties they face.
This is my first year running the Falmouth road race (or any charity marathon for that matter), and I am doing so because I am inspired by Jenny's passion. I am running in honor of Terry Nash, and I am also running to support Compassionate Care ALS. They provide so much for the families and those who are diagnosed with ALS. They provide support from the initial diagnosis and information about care and treatment, they provide equipment like the Tobii device that allows communication when ALS takes away the ability to speak, they provide beds, lifts and all manner of medical devices and equipment as well as counseling for those affected by ALS.
Please consider making a generous donation to benefit those affected by ALS today as well as those who might be faced with the diagnosis in the future. Thank you from the bottom of my heart!