About Compassionate Care ALS

Who are We?

Compassionate Care ALS (CCALS) is a nonprofit organization that supports people diagnosed with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig’s disease), their families and communities as they navigate the complexities, both physical and emotional, associated with the disease. We offer a broad and holistic range of services tailored to meet the needs of individuals with ALS and their families. The services we offer are typically not covered by insurance. Visit ccals.org to learn more.

What is ALS?

ALS is a degenerative and fatal neuromuscular disease that causes individuals to gradually lose control of their voluntary muscles. Also known as Lou Gehrig’s disease, ALS has no known cause or cure. The disease progresses differently in each case, though people often die when they lose the capacity to breathe or swallow, while retaining their ability to see, hear, and comprehend what is happening.

Our History

Gordon T. Heald was an active New England businessman who participated in and gave generously to local charities. When he was diagnosed with ALS in 1997, Ron Hoffman and Gordon’s wife Elizabeth assumed the role of full-time caregivers. Gordon was amazed by the impact CARE had on his quality of life and his legacy was the Gordon T. Heald Fund, an organization to support ALS patients, caregivers and their families. In 2002, Ron founded Compassionate Care ALS, encompassing the Heald fund, to further enhance the services we could provide and to expand our offerings to healthcare professionals.

What does Compassionate Care ALS Offer?

Compassionate Care ALS offers a broad and holistic range of services tailored to meet the individual needs of each person living with ALS and their family. These services are often not covered by medical insurance. Beyond logistical support, Compassionate Care ALS provides heart-centered listening and the voice of compassion as families grapple with difficult choices. It educates individuals and families about hospice and palliative care, what they are, and the ways in which the organization’s services are complementary to those available through the conventional healthcare system. For more information about our programs and services, please visit the Compassionate Care ALS website.

How Can I Help?

Run the New Balance Falmouth Road Race to support us. Support a runner. Or send your tax-deductible donations to: Compassionate Care ALS, P.O. Box 1052, West Falmouth, MA, 02574 or contact Ron Hoffman at 508-444-6775 or at ron@ccals.org to inquire about donating goods, services, or volunteering your time.