In August 2016 I received the most devastating news I thought possible - my father was diagnosed with ALS. A 100% terminal illness with no cure and currently no hope. On average once diagnosed the life expectancy is 3-5 years to live. He did not even make it a year post diagnosis. He died July 27, 2017. Every single day has been difficult dealing with the monumental loss.
For those of you who knew my dad, Phil LeMarbre, you know what an extraordinary man he was. He was happily married to the love of his life for 40 years, raised 5 children, and was an amazing Papa to his 8 grandchildren.
The ALS community is truly amazing, especially Compassionate Care. CCALS was a vital life line for us. Whenever we had questions we needed answered, fears we needed laid to rest, or just someone to talk to CCALS was there. I don't know how was would have made it through it without them.
As some of you know - running is not my favorite thing to do. But I am not running this race for me. I am running this for my father. Every step he cannot take I will take for him during this race.
Please help me reach my goal of raising $1500 for CCALS so they may be able to continue helping families like mine.