For those of you who know my dad, Phil LeMarbre, you know what an extraordinary man he is. He has been happily married to the love of his life for nearly 40 years, raised 5 children, and is a great Papa to his 8 grandchildren. He has also been living with ALS since August of 2016.
It has been a devastating diagnosis for my entire family and our lives have stopped while trying to process what this means for him and for us.
Something we never knew was how amazing the ALS community is and how they really come together for one another. Compassionate Care has been a vital life line for us. Whenever there are questions we need answered, fears we need laid to rest, or just someone to talk to CCALS has been there. Without them we would be struggling even more dealing with the diagnosis - both mentally and financially.
Watching a loved one live with ALS is not easy. It is difficult to sit on the side lines and watch as they lose their ability to walk, use their arms and speak. There is not much I can do for him - but running this race is something I can do to help.
As some of you know - running is not my favorite thing to do. But I am not running this race for me. I am running this for my father. Every step he cannot take I will take for him during this race.
Please help me reach my goal of raising $1500 for CCALS so they may be able to continue helping families like mine.